Perhaps even more than the physical trauma, for me the biggest challenges were on the mental side. Wondering if I would ever be able to lead a normal life whilst being confined to a wheelchair and unable to participate in life in the way that I wanted to. This would lead to feelings of frustration, hopelessness and low self-esteem.
The condition limited me especially during childhood because I had to undergo numerous surgeries and missed out on a lot of fun moments. I remember the intense sense of frustration I used to feel, at having to watch from my bedroom window while my sisters and all the other kids in the neighbourhood played outside in the sunshine.